If you’re an active person like me, getting diagnosed with a vestibular disorder can make walking difficult, let alone hitting the gym. For the first 6 months of my newly diagnosed condition, I was unable to do much in terms of working out.
Running has always been my therapy, and I could hardly make it .25 miles before wanting to fall over. If I wasn’t running, I was taking boot camp classes at my gym, and all of a sudden, lifting weights was out of the question. I gained 10lbs which only made the sadness I was feeling about my condition worse. Was this my new life?
However, it was when I went to vestibular rehab that I realized the importance of retraining my brain to find balance – that remaining sedentary wasn’t helping me get any better and that we must do different exercises to increase our tolerance to movement.
It was then that I realized if I ever wanted to be active again, I needed to push through my workouts and deal with the dizziness that followed. I held onto the idea that if I could increase my tolerance to uncomfortable movement, balance would be waiting for me.
This fall will be 3 years since I first came down with chronic vestibular migraine (VM), and I’m happy to report that I am active “most days.” I listen to my body and if I’m not having an attack, you can find me burning some extra calories doing the following activities…
Running
Ever since I graduated from college, I have been super into running. I’ve run several 5K and 10K races here in Dallas and completed the Disney Princess Half Marathon in Orlando. That said, you can imagine how devastated I was when my balance felt like it was swept from underneath me.
It’s taken a few years, but I’m finally able to run longer distances again without feeling too dizzy. However, it’s been a marathon, not a sprint. (See what I did there?)
I had to set specific goals to get where I’m at today in terms of mileage. At first, I would push myself in .25 mile increments just to see how I felt after the run. If it was too hard on my body, I would only run that mileage until I could finish without feeling too dizzy and so on.
Today, I can run 4 miles and am working on training for my first 10K since my diagnosis.
TIP: I wear a running hat and polarized sunglasses to protect my eyes from the sunlight which could trigger an attack. I’m extremely light sensitive with my VM, so it’s SUPER important that I shield myself from the light.
Also, drink LOTS of water. Dehydration is just asking for you to have a migraine attack.
Online Barre Classes
Before getting sick, when I wasn’t running, I was at the gym doing boot camp and body pump classes. I love the group fitness environment because it always motivates me.
However, after I was diagnosed with VM, I was terrified to do any quick HIIT type of workout because I didn’t want to fall down. The thought of doing burpees or jump squats in a large crowd is still a lot for me, and I think it will take time for me to get there. Since then, though, I’ve found an amazing solution.
One of my clients (The Ballet Physique) I do marketing for is a ballet-inspired barre studio out of Littleton, Colorado, and they just recently launched their online “Streaming Studio.” I started doing the workouts at home, and, man, is it giving me the next level of fitness I’ve needed but in the comfort of my own home.
I’m not afraid of falling down, looking stupid or taking breaks because I can simply hit pause. The other great thing is that a lot of the workouts are very similar to what I was doing before at my gym. Not to mention, because of the dance element, these workouts have helped me gain balance in different ways I am not getting from running. Oh, and I’m SO sore after doing them.
Sure, some workouts are probably too much movement for me currently, but I love having the flexibility of choosing what I can do from my home office. Plus, because you can do these online classes anywhere, you really never have an excuse.
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Yoga
I enjoyed yoga before I was diagnosed but afterward was terrified to do anything that didn’t have me sitting upright. I was already dizzy, so why make it worse? It wasn’t until my neurologist, Dr. Beh at UTSW in Dallas, TX, told me that I needed to do exercises that I loved previously because it actually helps you re-train your brain.
He suggested I try yoga because of the benefits it has for migraine. You see, poses like downward facing dog brings blood flow into your brain that can actually alleviate a migraine attack.
I’m so proud of myself that I can keep up with the class now regarding poses and the flow. However, if I get dizzy, it’s perfectly okay. I know my limits, and if I need to rest or sit down in child’s pose for a moment, I can. Yoga is such an inviting community, and they strongly advise that you listen to your body.
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I hope this post inspires you to get out today and be active. A diagnosis like VM can make you want to stay in your house forever in order to avoid making your dizziness worse. Believe me, I get it. It can cause anxiety and depression which all, in turn, decrease your overall stamina.
However, let this post be a reminder that by just taking a walk around the block is a win. And maybe the next day you walk two blocks and so on. If I am able to re-incorporate fitness into my lifestyle, I believe you can, too!
Diane Poldino
June 17, 2019Kayla – great blog! I wish you every success!!
Kayla McCain
June 19, 2019Thank you, Diane! 🙂
Kari
June 19, 2019Thank you for this!! I have Ménière’s disease. Health and fitness have always been my passion, this disease has definitely hindered that! Inspiring read!!!
Tessa Brandts
June 19, 2019Great post! I have a vestibular injury from vestibular neuritis and bppv and have been doing physio for a not a year. I used to be a long distance runner as well and I have found it very challenging to get back into running and walking. My therapist has encouraged me to try a run walk program and online yoga. It’s been difficult but I’ve made progress! It’s encouraging to hear about other people working towards similar goals…and the struggles that we face to just do what every other person can do with so much less effort. Keep up the good work and keep posting your progress! It is amazing how with hard work and diligence we are able to retrain our brain 😊😊😊😊
Ben
December 7, 2019My question is how do you feel the next day after you run? I feel fine running but after feel horrible.
Martha
February 24, 2020I have recently been diagnosed with vestibular migraine and find this extremely informative and will continue reading through it when I finish work. I’ve been so scared to basically do any physical stuff “just in case it sets it off. All the best… Martha..
Rosjane
August 12, 2021I am so encouraged. I was diagnosed with VM and I am just paralyzed. I am afraid to do any type of exercise even walk never mind lifting weights. I have every size free weights at home and I am going to go slow and try the ballet physique exercise first. Thank You!
Rosjane
August 12, 2021Is the treadmill out for VM. I just bought a treadmill but the moving belt and bright display lights for mileage and time and sending me into a spin even if I go slow. I am thinking of returning the treadmill because I have 30 days to try it out. I think walking on steady ground will cause less symptoms. Can I get your opinion on treadmills and VM.